Summary Data – Updated Jan 2019
TABLE 1: Family Recruitment
| Male | Female | Total | |
|---|---|---|---|
| Population-based families | 14060 | ||
| Affected1 with breast cancer | 119 | 10739 | 10858 |
| Unaffected2 with breast cancer | 5486 | 15940 | 21426 |
| Total population-based individuals | 5605 | 26679 | 32284 |
| Clinic-based families | 2760 | ||
| Affected1 with breast cancer | 44 | 2514 | 2558 |
| Unaffected2 with breast cancer | 1343 | 3903 | 5246 |
| Total clinic-based individuals | 1387 | 6417 | 7804 |
| Total Individuals | 6992 | 33096 | 40088 |
| Total Families | 16820 |
TABLE 2: Family Data for Population-Based Families
| Male | Female | Total | |
|---|---|---|---|
| All Individuals in Population-based Families | |||
| Baseline epidemiology data1 | 4957 | 25551 | 30508 |
| 1st follow-up epi data | 2341 | 10492 | 12833 |
| 2nd follow-up epi data | 45 | 10494 | 10539 |
| 3rd follow-up epi data | 0 | 7652 | 7652 |
| Baseline food frequency questionnaire data | 2218 | 17131 | 19349 |
| Blood/buccal samples | 2696 | 18856 | 21552 |
| Tumor tissue2 | 46 | 2823 | 2869 |
| Treatment information3 | 77 | 6645 | 6722 |
| Affected4 Individuals in Population-based Families | |||
| Baseline epidemiology data1 | 107 | 10172 | 10279 |
| 1st follow-up epi data | 34 | 4463 | 4497 |
| 2nd follow-up epi data | 1 | 4910 | 4911 |
| 3rd follow-up epi data | 0 | 3950 | 3950 |
| Baseline food frequency questionnaire data | 92 | 8039 | 8131 |
| Blood/buccal samples | 96 | 9182 | 9278 |
| Tumor tissue2 | 46 | 2823 | 2869 |
| Treatment information3 | 77 | 6645 | 6722 |
| Unaffected5 Individuals in Population-based Families | |||
| Baseline epidemiology data1 | 4850 | 15379 | 20229 |
| 1st follow-up epi data | 2307 | 6029 | 8336 |
| 2nd follow-up epi data | 44 | 5584 | 5628 |
| 3rd follow-up epi data | 0 | 3702 | 3702 |
| Baseline food frequency questionnaire data | 2126 | 9092 | 11218 |
| Blood/buccal samples | 2600 | 9674 | 12274 |
| Tumor tissue2 | 0 | 0 | 0 |
| Treatment information3 | 0 | 0 | 0 |
TABLE 3: Family Data for Clinic-Based Families
| Male | Female | Total | |
|---|---|---|---|
| All Individuals in Clinic-based Families | |||
| Baseline epidemiology data1 | 1291 | 6123 | 7414 |
| 1st follow-up epi data | 548 | 4058 | 4606 |
| 2nd follow-up epi data | 11 | 4458 | 4469 |
| 3rd follow-up epi data | 0 | 2475 | 2475 |
| Baseline food frequency questionnaire data | 1024 | 4876 | 5900 |
| Blood/buccal samples | 1279 | 6012 | 7291 |
| Tumor tissue2 | 15 | 1041 | 1056 |
| Treatment information3 | 35 | 1732 | 1767 |
| Affected4 Individuals in Clinic-based Families | |||
| Baseline epidemiology data1 | 41 | 2414 | 2455 |
| 1st follow-up epi data | 21 | 1508 | 1529 |
| 2nd follow-up epi data | 0 | 1581 | 1581 |
| 3rd follow-up epi data | 0 | 901 | 901 |
| Baseline food frequency questionnaire data | 30 | 2006 | 2036 |
| Blood/buccal samples | 43 | 2374 | 2417 |
| Tumor tissue2 | 15 | 1041 | 1056 |
| Treatment information3 | 35 | 1732 | 1767 |
| Unaffected5 Individuals in Clinic-based Families | |||
| Baseline epidemiology data1 | 1250 | 3709 | 4959 |
| 1st follow-up epi data | 527 | 2550 | 3077 |
| 2nd follow-up epi data | 11 | 2877 | 2888 |
| 3rd follow-up epi data | 0 | 1574 | 1574 |
| Baseline food frequency questionnaire data | 994 | 2870 | 3864 |
| Blood/buccal samples | 1236 | 3638 | 4874 |
| Tumor tissue2 | 0 | 0 | 0 |
| Treatment information3 | 0 | 0 | 0 |